Introduction

The end of life care profile has been designed by the National End of Life Care Intelligence Network (NEoLCIN) to improve the availability and accessibility of information and intelligence around palliative and end of life care. It provides a snapshot overview across multiple geographies in England, to support commissioning and planning of local services. The core aim is to provide information for improvement, not judgment.

Comments on our tools are welcome. Please send your feedback and questions to neolcin@phe.gov.uk

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Profile domains

The data in the End of life care profile is grouped into domains. These include:

  • place of death
  • underlying cause of death
  • mortality rates
  • death in usual place of residence (DiUPR)
  • care home use at the end of life
  • dementia (including Alzheimer’s disease)

New tool available

The Atlas of variation for palliative and end of life care is part of a collection of themed Atlases on healthcare, and is available on the PHE’s Atlas of variation website. The Atlas contains 29 indicators on need for palliative and end of life care and the quality of care in hospitals and in the community. There is also an accompanying interactive data tool-Instant Atlas.  This tool enables local comparison against peers.

Recent updates

February 2019

Care home bed rate and nursing home bed rate has been updated to include 2018 data for England, Government Office Region, STP, CCG, County, Unitary Authority, District and SCN geographical areas. A commentary on this update is available at https://www.gov.uk/government/publications/end-of-life-care-profiles-february-2019-data-update/statistical-commentary-end-of-life-care-profiles-february-2019-update

November 2018

Temporary Resident Care Home Deaths has been updated to include 2016 data for England, Government Office Region, STP, CCG, County, Unitary Authority, District and SCN geographical areas. 

July 2018

Death in Usual Place of Residence domain has been updated to include 2016 data for England, Government Office Region, STP, CCG, County, Unitary Authority, District and SCN geographical areas. A commentary on this update is available at https://www.gov.uk/government/statistics/end-of-life-care-profiles-july-2018-data-update amendments have been made to area classification of data in all years to align with current definitions, this has resulted in some small changes to published data, most notably : 

• data for SCNs in particular Greater Manchester and Eastern Cheshire SCN and Northern England SCN.
• data for CCGs (2017/18 configuration) in particular NHS Guildford and Waverley CCG and NHS Coastal West Sussex CCG

An error has been identified in the local authority data for “DIUPR – Respiratory disease (%), Persons, All Ages” for 2015 only. These values have now been corrected.

Extra functionality has been added to the profile in all domains to;
• provide information on inequalities,
• compare indicators in a scatter plot,
• analyse recent trends,
• show the distribution of values for each indicator nationally or regionally as a ‘boxplot’

February 2018

Cause of Death and Place of Death domains have been updated to include 2016 data for England, Government Office Region, County, Unitary Authority and District geographical areas. A commentary on this update is available at https://www.gov.uk/government/publications/end-of-life-care-profiles-february-2018-update/statistical-commentary-end-of-life-care-profiles-february-2018-update

January 2018

Care home bed rate and nursing home bed rate were updated to include 2017 data.

December 2017

Cause of Death and Place of Death domains have been updated to include data for 2016 for England, Government Office Region, STP, SCN and CCG geographical areas.

August 2017

The indicators showing the availability of care home beds and the availability of nursing home beds now include data for the fiscal year ending on 31 March 2016

December 2017

Cause of Death and Place of Death domains have been updated to include data for 2016 for England, Government Office Region, STP, SCN and CCG geographical areas.

 

August 2017

The indicators showing the availability of care home beds and the availability of nursing home beds now include data for the fiscal year ending on 31 March 2016

 

February 2017

Temporary resident care home deaths now have data for the calendar year 2015

November 2016

Place of death, Underlying cause of death, Mortality and Deaths in usual place of residence now have data for 2015 calendar year

August 2016

NEW domain called "Care home use at end of life" created. This has three new indicators on temporary resident care home deaths and availability of care/nursing home beds.

Trend data added for death in usual place of residence(DiUPR) by underlying cause of cancer, respiratory disease, circulatory disease and any mentions of Dementia and/or Alzheimer's disease, from 2004 to 2014 calendar years. Also in this update are trend data for deaths in care home temporary residents.

June 2016

2014 updates added to the Mortality domain.

April 2016

2014 updates added to the following domains: Place of Death, Death in Usual Place of Residence and Underlying Cause of Death.

February 2016

Dementia specific domain added – includes prevalence, directly standardized mortality, emergency admission rates, etc., by CCGs and County/Unitary Authorities, extracted from the Dementia Profile. For more indicators, please visit Dementia Profile.

December 2015

Mortality rates added

November 2015

Death in Usual Place of Residence (DiUPR) added

October 2015

First Version Released