Introduction

Welcome to the end of life care profiles. These have been produced to improve the availability and accessibility of information around end of life care. The profiles provide a snapshot overview for various geographies in England. They are intended to help local government and health services improve care at the end of life.

The end of life care profiles have been developed by Public Health England’s National End of Life Care Intelligence Network to support the NHS, local authorities, health services and other interested stakeholders to monitor comparative information on factors that describe population trends associated with the end of life.

Providing care at the end of life often involves the interaction of many different care agencies. The profiles will help commissioners and providers to get a clearer picture of the end of life care needs of their local populations. These will help with the planning and delivery of services and will support local drives towards improving end of life care.

The Profiles are grouped into the following domains: Place of Death, Underlying Cause of Death, Mortality Rates, Death in Usual Place of Residence (DiUPR), Care home use at end of life, Dementia (includes Alzheimer’s disease) and other relevant indicators (those extracted from other profiles within PHE). More domains will be added as soon as they become available. In each domain and where possible, information is presented by Government Office Region, Strategic Clinical Network (SCN), Clinical Commissioning Group (CCG), County and Unitary Authority (upper tier local authorities) and District and Unitary Authority (lower tier local authorities). Estimates for other geographical configurations are derived automatically by the profiling tool. In each domain, information is presented for persons (males and females) by five age groupings namely; 0-64, 65-74, 75-84, 85 years and above and All Ages. When exploring the data on this tool, the most current year available is shown by default in the ‘Overview’, ‘Compare Areas’ and ‘Areas’ tabs, while the ‘Trends’ tab presents all available years of data for each indicator.

Due to very small numbers data for the Isles of Scilly and Cornwall have been combined. The same applies to data for the City of London and Hackney. Please note that the year of death registration is reported rather than the year of death’s occurrence.

 

If you have any questions about this data, please contact neolcin@phe.gov.uk

Recent updates

August 2017

The indicators showing the availability of care home beds and the availability of nursing home beds now include data for the fiscal year ending on 31 March 2016

 

February 2017

Temporary resident care home deaths now have data for the calendar year 2015

November 2016

Place of death, Underlying cause of death, Mortality and Deaths in usual place of residence now have data for 2015 calendar year

August 2016

NEW domain called "Care home use at end of life" created. This has three new indicators on temporary resident care home deaths and availability of care/nursing home beds.

Trend data added for death in usual place of residence(DiUPR) by underlying cause of cancer, respiratory disease, circulatory disease and any mentions of Dementia and/or Alzheimer's disease, from 2004 to 2014 calendar years. Also in this update are trend data for deaths in care home temporary residents.

June 2016

2014 updates added to the Mortality domain.

April 2016

2014 updates added to the following domains: Place of Death, Death in Usual Place of Residence and Underlying Cause of Death.

February 2016

Dementia specific domain added – includes prevalence, directly standardized mortality, emergency admission rates, etc., by CCGs and County/Unitary Authorities, extracted from the Dementia Profile. For more indicators, please visit Dementia Profile.

December 2015

Mortality rates added

November 2015

Death in Usual Place of Residence (DiUPR) added

October 2015

First Version Released