Dementia surveillance factsheets

The dementia surveillance factsheet indicators were last updated on 2 June 2026, including data up to March 2026. We have paused updates to the dementia data and intelligence products while we review stakeholder feedback and evaluate metrics to support the modern service framework for frailty and dementia.

During this pause, the estimated dementia diagnosis rate and other primary care dementia metrics remain accessible through Primary Care Dementia Data - NHS England Digital. From July 2026, this data will be published in a revised format and updated quarterly every April, July, October, and January.

About the monthly surveillance factsheets

These interactive factsheets show the disparities that exist across England in relation to the diagnosis of people with dementia and the care they receive.

Indicators included in the factsheets are:

• prevalence of people with a formal diagnosis of dementia
• estimated dementia diagnosis rate
• referrals to memory assessment services by primary care practices
• levels of antipsychotic drug prescribing for people with dementia
• provision of care plans and care plan reviews

The national (England) factsheet is aimed at informing national and local policy development with data illustrated for England and 7 NHS regional geographies. It includes integrated care board (ICB) comparator charts for each indicator.

The integrated care board (ICB) factsheets are aimed at local commissioners to help in planning services around the needs of people with dementia. There are interactive factsheets for each of the 42 ICBs in England, with data illustrated at both ICB levels and sub ICB locations where they exist. The reports section also contains a selection of archived factsheets.

The dementia surveillance maps show the March 2024 data spatially. The aim is to help commissioners visualise geographically the year-end distribution of the dementia-related population and need.

See the CSV files of the data and metadata used in this publication.  

Please note that:

1. For the March 2026 release, practices have been mapped to their commissioning organisations as at 31st March 2026 and do not reflect the April 2026 ICB merger and boundary changes. This is also reflected within the mapping file included within the release.
2. Following the Primary Care Dementia Data publication consultation 2026, there are proposed changes to the format and content of the PCDD publication. Further information on the consultation and the proposed changes can be found here. 
3. Data quality issues and methodological change. In January 2026 NHS England, owners of the Primary Care Dementia Dataset, published notification of data revision for October and November 2025 to include six additional GP practices. These changes are included in the factsheets published February 2026 onwards.
4. Data quality issues and methodological change. In November 2024 NHS England, owners of the Primary Care Dementia Dataset, published notification of data quality issues and methodological changes impacting on the dataset. Neither issue is considered to have had a significant impact on the dataset.  
5. Data on Antipsychotic prescribing.  In November 2023 a new release for SNOMED CT codes was published for England relating to antipsychotic medication. A transition period of up to 8 weeks exists while clinical coders move to the updated codes set for recording related activity. In data published for November 2023 by NHS England, it is evident that the pulished data are lower than the true count. This is impacting on the national rate and the rate for the majority of sub ICB, ICB and regional locations. The transition is expected to be complete for data relating to February 2024. The situation is being monitored by colleagues in NHS England who publish the Primary Care Dementia Data publication. 
6. Boundary changes to areas covered by ICBs. In April 2023 geographic boundary changes affected 2 ICB areas in England. As a result, new geographic codes have been published for Surrey Heartlands ICB and Sussex ICB. The factsheets for these 2 ICBs have been published through the Fingertips platform labelled using the old geographic code. The organisation codes for the ICBs did not change.