Policy and guidance

Recent policy and clinical guidance for professionals working in palliative and end of life care.

Age UK (2019) Policy Position Paper. End of life care (England)

Care Quality Commission (2021) State of care 2020/21

Department of Health and Social Care (2008) End of life care strategy: promoting high quality care for adults at the end of their life

Department of Health and Social Care (2015) Improvements to care in the last days and hours of life

Department of Health and Social Care (2018) NHS continuing healthcare fast-track pathway tool

Department of Health and Social Care (2015) One chance to get it right: one year on report

Department of Health and Social Care (2016) Our commitment to you for end of life care: The government response to the review of choice in end of life care

General Medical Council (2010) Treatment and care towards the end of life: Good practice in decision making

Hospice UK Resources for rehabilitative palliative care

Institute for Public Policy Research (2021) The state of end of life care: Building back better after Covid-19

King’s Health Partners (2018) Palliative Care Clinical Academic Group outcomes book

NHS (2019) NHS Long term plan

NHS Digital (2015) Palliative care co-ordination: core content (SCCI1580)

NHS England End of life care

NHS England Personal health budgets in end of life care

NHS England (2015) Transforming end of life care in hospitals

NHS England (2016) New care models: vanguards – developing a blueprint for the future of NHS and care services

NHS England (2017) Palliative care currency Developing a new approach to palliative care funding- final report 2015/16 testing

NHS England (2019) Universal personalised care: Implementing the comprehensive model

NHS England & NHS Improving Quality (2014) Commitment for carers: report of the findings and outcomes

NHS Improving Quality (2014) Lessons learned – implementing an Electronic Palliative Care Co-ordination System (EPaCCS)

National Institute for Health and Care Excellence (2017) Care of dying adults in the last days of life [QS144]

National Institute for Health and Care Excellence (2019) End of life care for adults in the last year of life: service delivery [NG142] 

National Palliative and End of Life Care Partnership (2021) Ambitions for palliative and end of life: A national framework for local action 2021-2026

Parliamentary and Health Service Ombudsman (2015) Dying without dignity Investigations by the parliamentary and health service ombudsman into complaints about end of life care

Public Health England, National End of Life Care Intelligence Network (2016) Electronic Palliative Care Co-ordination Systems (EPaCCS) national data project

Public Health England, National End of Life Care Intelligence Network & NHS Improving Quality (2014) Electronic Palliative Care Co-ordination Systems (EPaCCS) in England A survey of clinical commissioning groups

Royal College of General Practitioners and Marie Curie UK The Daffodil Standards

The Choice in End of Life Care Programme Board (2015) What’s important to me. A review of choice in end of life care

The Leadership Alliance for the Care of Dying People (2014) One chance to get it right - improving people’s experience of care in the last few days and hours of life (Liverpool Care Pathway Review)

Contact us 

Send feedback and questions to neolcin@dhsc.gov.uk