Recent policy and clinical guidance for professionals working in palliative and end of life care.
Age UK (2019) Policy Position Paper. End of life care (England)
Association of Chartered Physiotherapists in Oncology in Palliative Care (2022) Universal principles for advance care planning (ACP)
Care Quality Commission (2021) State of care 2020/21
Department for Levelling Up, Housing and Communities (2020) Public health funerals: good practice guidance
Department of Health and Social Care (2008) End of life care strategy: promoting high quality care for adults at the end of their life
Department of Health and Social Care (2015) Improvements to care in the last days and hours of life
Department of Health and Social Care (2018) NHS continuing healthcare fast-track pathway tool
Department of Health and Social Care (2015) One chance to get it right: one year on report
Department of Health and Social Care (2016) Our commitment to you for end of life care: The government response to the review of choice in end of life care
Department of Health and Social Care (2023) Major conditions strategy: case for change and our strategic framework
Department for Works and Pensions (2023) Special rules for end of life care: healthcare professionals resources
General Medical Council (2022) Treatment and care towards the end of life: Good practice in decision making
Hospice UK (2022) Care after death. Guide for staff responsible for care after death
Hospice UK Rehabilitative palliative care
Hospice UK Where to get bereavement support
Institute for Public Policy Research (2021) The state of end of life care: Building back better after Covid-19
King’s Health Partners (2018) Palliative Care Clinical Academic Group outcomes book
National Bereavement Alliance and Hospice UK (2019) Care after caring
NHS (2019) The NHS Long term plan
NHS Digital (2015) Palliative care co-ordination: core content (SCCI1580)
NHS England Palliative and end of life care
NHS England Personal health budgets for palliative and end of life care
NHS England (2016) New care models: vanguards – developing a blueprint for the future of NHS and care services
NHS England (2017) Palliative care currency
NHS England (2019) Universal personalised care: Implementing the comprehensive model
NHS England (2022) Palliative and end of life care: Statutory guidance for integrated care boards (ICBs)
NHS England (2022) Universal principles for advance care planning (ACP)
NHS England & NHS Improving Quality (2014) NHS England's commitment for carers
NHS England (2023) Specialist palliative and end of life care services: Adult specification
NHS Improving Quality (2014) Lessons learned implementing an Electronic Palliative Care Co-ordination System (EPaCCS)
National Institute for Health and Care Excellence (2017) Care of dying adults in the last days of life [QS144]
National Institute for Health and Care Excellence (2019) End of life care for adults in the last year of life: service delivery [NG142]
National Institute for Health and Care Excellence (NICE) (2019) End of life care for infants, children and young people with life-limiting conditions: planning and management (NG61)
National Palliative and End of Life Care Partnership (2021) Ambitions for palliative and end of life: A national framework for local action 2021-2026
Parliamentary and Health Service Ombudsman (2015) Dying without dignity. Investigations by the parliamentary and health service ombudsman into complaints about end of life care
Public Health England, National End of Life Care Intelligence Network (2016) Electronic Palliative Care Co-ordination Systems (EPaCCS) national data project
Public Health England, National End of Life Care Intelligence Network & NHS Improving Quality (2014) Electronic Palliative Care Co-ordination Systems (EPaCCS) in England
Royal College of General Practitioners and Marie Curie UK The Daffodil Standards
The Choice in End of Life Care Programme Board (2015) What’s important to me. A review of choice in end of life care
The Leadership Alliance for the Care of Dying People (2014) One chance to get it right - improving people’s experience of care in the last few days and hours of life (Liverpool Care Pathway Review)
Send feedback and questions to neolcin@dhsc.gov.uk
