People from certain groups sometimes experience poorer quality care at the end of their lives. This section signposts policy and guidance which addresses these inequalities.
Ethnicity
BASW Palliative and end of life care for Black, Asian and Minority Ethnic groups in the UK
Public Health England, King’s College London, Marie Curie Cancer Care (2013) Palliative and end of life care for Black, Asian and Minority Ethnic groups in the UK Demographic profile and the current state of palliative and end of life care provision
Public Health England, National End of Life Care Intelligence Network (2017) Place of death by ethnic group for people who died from cancer, England 2008 to 2017
Deprivation
All-Party Parliamentary Group for Terminal Illness (2021) No place like home
Marie Curie (2021) Inequalities in palliative care - Deprivation
Homelessness
Care Quality Commission (CQC) and Faculty for Homeless and Inclusion Health (2017) A second class ending. Exploring the barriers and championing outstanding end of life care for people who are homeless
Frontline Network St Mungo’s How to support individuals and end of life care needs
Government Statistical Service UK official statistics on homelessness: Comparisons, definitions, and processes
Hospice UK (2018) Care committed to me
Office for National Statistics (2020) Deaths of homeless people in England and Wales
St Mungos & Marie Curie Cancer Care (2017) Homelessness and end of life care. Practical information and tools to support the needs of homeless people who are approaching the end of life and those who are bereaved
The University of Sheffield and Crisis (2012) Homelessness kills: An analysis of the mortality of homeless people in early twenty-first century England
Prisoners
Ambitions for Palliative and End of Life Care Partnership (2018) Dying well in custody charter. A national framework for local action
Centre for Policy on Ageing (2016) Rapid review of diversity in older age – Older offenders
Hospice UK (2021) Dying behind bars Ministry of Justice Safety in Custody quarterly: Update to March 2020
Prisons and Probation Ombudsman for England and Wales (2013) Learning from PPO Investigations: End of life care
Public Health England (2017) Health and social care needs assessments of the older prison population
Learning disabilities
NHS England & Palliative care for people with learning disabilities network (2017) Delivering high quality end of life care for people who have a learning disability
NHS England National end of life care programme: The route to success in end of life care - achieving quality for people with learning disabilities
PCPLD Network and NHS England (2017) Delivering high quality end of life care for people who have a learning disability. Resources and tips for commissioners, service providers and health and social care staff
PCPLD Network Resources
LGBTQ+
Marie Curie (2016) “Hiding who I am” The reality of end of life care for LGBT people
LGBT Foundation End of life care
General
Care Quality Commission (2016) A different ending: end of life care review
Hospice UK (2021) Equality in hospice and end of life care: challenges and change
Macmillan (2017) The final injustice: Variations in end of life care in England
Manchester Metropolitan University and Community Fund (2019) Good Practice Guidance. Supporting people with substance abuse problems at end of life
Manchester Metropolitan University (2019) Palliative end of life care for people with alcohol and drug problems
NHS England Addressing inequalities in end of life care
Send feedback and questions to neolcin@dhsc.gov.uk
