A list of other intelligence products such as reports, data sources and interactive tools which may be of interest to people working in palliative and end of life care.
Bereavement
COVID Bereavement Bereavement during COVID-19: A national study of bereaved people’s experiences and the impact on bereavement services
Department for Work and Pensions Bereavement Support Payment Statistics
Workforce
Hospice UK (2019) Results from an analysis of hospice community volunteering
NHS Digital General Practice workforce interactive dashboard
NHS Digital NHS workforce statistics
Skills for Care Adult Social Care workforce data (ASC-WDS) and publications
Carers / Unpaid carers
Age UK (2014) Parliamentary Briefing Social Care Reform
Age UK (2015) Briefing: the health and care of older people in England
Carers UK (2014) Caring and family finances Inquiry
Carers UK (2019) Facts about carers
Carers UK (2019) State of caring
Department for Work and Pensions (2020) The Family Resources Survey (FRS) 2018-2019
NHS Digital (2019) Personal Social Services Survey of Adult Carers in England 2018-2019
Public Health England National GP Profiles (unpaid carers)
Office for National Statistics Population explorer: age, health and unpaid care
Office for National Statistics (2017) Unpaid carers provide social care worth £57 billion
Coroners
Ministry of Justice (2019) Coroners statistics 2019: England and Wales
Economic cost
Public Health England End of life care economic tool
Nuffield Trust (2014) Exploring the cost of care at the end of life
Funerals
GOV.UK Public Health Funerals 2020/21
Royal London (2020) The impact of Covid-19 on funerals. National Funeral Cost Index Report 2020
Sunlife (2021) Cost of Dying Report
General
Care Quality Commission Local authority area data profiles
Gold Standards Framework (2009) End of life care in primary care: 2009 national snapshot
Hospice UK Population Based Needs Assessment Tool (PopNAT)
Hospice UK Facts and figures
Institute for Public Policy Research (2018) End of life care in England, a briefing paper
Marie Curie (2021) The Better End of Life Report 2021
NHS Digital Social care collections 2021
NHS England Delayed transfers of care
NHS England (2019) NHS Continuing Healthcare and NHS-funded Nursing Care
NHS England NHS RightCare (2016) Long term condition packs
NHS England (produced collaboratively with PHE and CQC): Resources for commissioners End of life care sustainability transformation partnership (STP) support packs (register for access)
NHS England (2019) 'Where to look' packs
NHS RightCare Intelligence products
Office for National Statistics (2015) National Survey of Bereaved People (VOICES): England
Public Health England (2019) Classification of place of death
Public Health England (2017) Health profile for England
Public Health England, National End of Life Care Intelligence Network (2019) Death in people aged 75 years and older in England 2017
Public Health England, National End of Life Care Intelligence Network (2020) Emergency admissions in the 3 months before death
Public Health England, National End of Life Care Intelligence Network (2017) End of life care data to inform Sustainability and Transformation Partnerships (STPs): updated tool and metadata guide
Public Health England, National End of Life Care Intelligence Network & NHS England (2016) Evaluation of palliative care clinical data set
Public Health England, National End of Life Care Intelligence Network (2019) Older people who died in hospital: England 2017
Public Health England, national end of life care intelligence network (2019) Palliative and end of life care: hospital deaths 2006 to 2017
Public Health England, National End of Life Care Intelligence Network (2020) Older people’s hospital admissions in the last year of life
Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2011) External causes of death
Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2011) Predicting death: estimating the proportion of deaths that are 'unexpected'
Public Health England & NHS RightCare (2018) Atlas of variation for palliative and end of life care in England
The King’s Fund (2014) Making our health and care systems fit for an ageing population
Send feedback and questions to neolcin@dhsc.gov.uk
