Conditions

Includes policy, guidance and intelligence on end of life care for different conditions.

Cancer

Cancer Research UK Cancer mortality statistics

Cancer Research UK Dying with cancer

Independent Caner Taskforce (2015) Achieving world-class cancer outcomes. A strategy for England 2015-2020

National Cancer Registration and Analysis Service (2015) Older People and Cancer report

National End of Life Care Intelligence Network & National End of Life Care Programme (2012) Deaths from Urological Cancers in England, 2001-10

National Institute for Health and Care Excellence (2004) Improving supportive and palliative care for adults with cancer [CSG4]

NHS RightCare (2018) Long Term Condition scenarios: colorectal cancer

Public Health England, National End of Life Care Intelligence Network (2014) Head and neck cancers in England: who dies from them and where do they die?

Public Health England National cancer registration and analysis service

Cardiovascular disease

British Heart Foundation (2014) Difficult conversations - talking to people with heart failure about the end of life

British Heart Foundation and Marie Curie (2017) Caring for someone with heart failure at the end of life

British Society for Heart Failure (2087) National heart failure audit 2016/17 summary report

Department of Health (2013) Improving cardiovascular disease outcomes: strategy

Hospice UK (2017) Heart failure and hospice care: how to make a difference

National End of Life Care Intelligence Network & National End of Life Care Programme (2013) Deaths from cardiovascular diseases: Implications for end of life care in England

Public Health England Cardiovascular disease profiles

Public Health England, National Cardiovascular Intelligence Network Cardiovascular disease data and analysis: guide for health professionals

Public Health England, National Cardiovascular Intelligence Network (2017) Cardiovascular disease primary care intelligence packs

Royal College of Physicians (2006) Stroke peer review scheme

Royal College of Physicians Sentinel Stroke National Audit Programme (SSNAP)

Dementia

Alzheimer's Society, Alzheimer's Research UK and Marie Curie (2017) Caring for someone with dementia at the end of life

Dementia Partnerships

Department of Health and Social Care (2015) Prime Minister's challenge on dementia 2020

National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from Alzheimer's Disease, Dementia and Senility in England

National Institute for Health and Care Excellence (2006) Dementia: supporting people with dementia and their carers in health and social care [CG42]

National Institute for Health and Care Excellence (2019) Dementia [QS184]

Public Health England, National Mental Health, Dementia and Neurology Intelligence Network (2016) Dementia data and analysis: a guide for health professionals

Public Health England, National Mental Health, Dementia and Neurology Intelligence Network Dementia profile

Public Health England, National Mental Health, Dementia and Neurology Intelligence Network and National End of Life Care Intelligence Network (2016) Dying with dementia. Data briefing

Frailty

NHS RightCare (2019) Frailty Toolkit

Kidney disease

NHS RightCare (2018) Long Term Condition scenarios: Parkinson’s NHS England

National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from Renal Diseases in England, 2001 to 2008

Liver disease

British Society of Gastroenterology (2014) BASL Decompensated Cirrhosis Care Bundle - First 24 Hours

National Confidential Enquiry into Patient Outcome and Death (2013) Alcohol Related Liver Disease: Measuring the Units

National Confidential Enquiry into Patient Outcome and Death (2015) Gastrointestinal Haemorrhage: Time to Get Control?

National End of Life Care Intelligence Network & National End of Life Care Programme (2012) Deaths from liver disease: Implications for end of life care in England

Public Health England and NHS RightCare (2017) The 2nd Atlas of variation in risk factors and healthcare for liver disease in England

National End of Life Care Programme (2013) Getting it Right: Improving end of life care for people living with liver disease

Neurological disease

National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from Neurodegenerative Diseases in England, 2002 to 2008

Public Health England, Neurology Intelligence Network and National End of Life Care Intelligence Network (2018) Deaths associated with neurological conditions

NHS England NHS RightCare (2019) Progressive Neurological Conditions Toolkit

Respiratory disease

British Lung Foundation and Marie Curie (2017) Caring for someone with chronic respiratory diseases at end of life

Public Health England Inhale - INteractive health atlas of lung conditions in England

Public Health England (2019) The 2nd Atlas of variation in risk factors and healthcare for respiratory disease

National End of Life Care Intelligence Network & National End of Life Care Programme (2011) Deaths from Respiratory Diseases: Implications for end of life care in England

Multi-morbidity

National Institute for Health and Care Excellence (2016) Multimorbidity: clinical assessment and management [NG56]

NHS England NHS RightCare Multi-Morbidity

Contact us 

Send feedback and questions to neolcin@phe.gov.uk