Includes policy, guidance and intelligence on end of life care for different conditions.
Cancer
Cancer Research UK Cancer mortality statistics
Cancer Research UK Dying with cancer
Independent Cancer Taskforce (2015) Achieving world-class cancer outcomes. A strategy for England 2015-2020
National Cancer Registration and Analysis Service (2015) Older people and cancer report
National End of Life Care Intelligence Network & National End of Life Care Programme (2012) Deaths from urological cancers in England, 2001-10
National Institute for Health and Care Excellence (2004) Improving supportive and palliative care for adults with cancer [CSG4]
National LGBT Cancer Network LGBT Palliative care
NHS RightCare (2018) Long term condition scenarios: colorectal cancer
Public Health England, National End of Life Care Intelligence Network (2014) Head and neck cancers in England: who dies from them and where do they die?
Transforming cancer services team for London (TCST), NHS National Cancer Registration and Analysis Service (NCRAS) & Public Health England (PHE) Hospital use and cancer treatment in last 90 days of life, London
Cardiovascular disease
British Heart Foundation (2014) Difficult conversations - talking to people with heart failure about the end of life
British Heart Foundation Heart Matters Wellbeing – End of life care
British Heart Foundation and Marie Curie (2017) Caring for someone with heart failure at the end of life
British Society for Heart Failure (2017) National heart failure audit 2016/17 summary report
Department of Health (2013) Improving cardiovascular disease outcomes: strategy
Hospice UK Heart failure and hospice care resources
Hospice UK (2017) Heart failure and hospice care: how to make a difference
Marie Curie Caring for someone with heart failure towards the end of life
Public Health England Cardiovascular disease profiles
Public Health England, National Cardiovascular Intelligence Network Cardiovascular disease primary care intelligence packs
Public Health England, National Cardiovascular Intelligence Network Cardiovascular disease data and analysis: Guide for health professionals
Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2013) Deaths from cardiovascular diseases: Implications for end of life care in England
Royal College of Physicians Sentinel Stroke National Audit Programme (SSNAP)
Taskforce for Lung Health End of life – Right care in the last year of life
COVID-19
British Geriatrics Society COVID-19: End of life care in older people
GOV.UK Coronavirus (COVID-19) dashboard UK
Hospice UK Coronavirus Guidance (COVID-19)
Institute for Public Policy Research (2021) The state of end of life care: Building back better after Covid-19
Macmillan Cancer Support End of life care and coronavirus
Public Health England Excess mortality in England: Weekly reports
Public Health England Wider Impacts of COVID-19 on Health (WICH) monitoring tool
The Patients Association (2020) The Pandemic Patient Experience
UKHSA (2021) Guidance for care of the deceased with suspected or confirmed coronavirus (COVID-19)
Dementia
Alzheimer's Society, Alzheimer's Research UK and Marie Curie (2017) Caring for someone with dementia at the end of life
Department of Health and Social Care (2015) Prime Minister's challenge on dementia 2020
National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from Alzheimer’s disease, dementia and senility in England
National Institute for Health and Care Excellence (2018) Dementia: assessment, management and support for people living with dementia and carers [NG97]
National Institute for Health and Care Excellence (2019) Dementia [QS184]
NHS England (2018) My future wishes. Advance Care Planning (ACP) for people with dementia in all care settings
Public Health England, National Mental Health, Dementia and Neurology Intelligence Network (2016) Dementia data and analysis: a guide for health professionals
Public Health England, National Mental Health, Dementia and Neurology Intelligence Network Dementia profile
Public Health England, National Mental Health, Dementia and Neurology Intelligence Network and National End of Life Care Intelligence Network (2016) Dying with dementia. Data briefing
Social Care Institute for Excellence (SCIE) End-of-life care and dementia: An introduction
Diabetes
Marie Curie Caring for someone with diabetes towards the end of life
Diabetes UK (2021) End of life guidance for diabetes care
Frailty
British Geriatrics Society End of Life Care in Frailty
Hospice UK Frailty and end of life care - Questions creating conversations
NHS RightCare (2019) Frailty Toolkit
Kidney disease
Marie Curie Caring for someone with kidney failure towards the end of life
National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from renal diseases in England, 2001 to 2008
NHS England (2015) End of life care in advanced kidney disease: A framework for implementation
NHS RightCare (2018) Long term condition scenarios: Progressive chronic kidney disease
Liver disease
British Society of Gastroenterology (2014) BASL decompensated cirrhosis care bundle - first 24 Hours
National Confidential Enquiry into Patient Outcome and Death (2013) Alcohol related liver disease: Measuring the Units
National Confidential Enquiry into Patient Outcome and Death (2015) Gastrointestinal haemorrhage: time to get control?
Public Health England Liver disease profiles
Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2012) Deaths from liver disease: Implications for end of life care in England
Public Health England and NHS RightCare (2017) The 2nd Atlas of variation in risk factors and healthcare for liver disease in England
Neurological disease
Marie Curie Caring for someone with motor neurone disease towards the end of life
Marie Curie Caring for someone with multiple sclerosis towards the end of life
Marie Curie Caring for someone with Parkinson’s towards the end of life
Motor Neurone Disease Association Palliative and end of life care
NHS England NHS RightCare (2019) Progressive neurological conditions Toolkit
Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from neurodegenerative diseases in England, 2002 to 2008
Public Health England, Neurology Intelligence Network and National End of Life Care Intelligence Network (2018) Deaths associated with neurological conditions
Respiratory disease
Marie Curie Caring for someone with a long-term lung condition
Public Health England Inhale - INteractive Health Atlas of Lung conditions in England
Public Health England (2019) The 2nd Atlas of variation in risk factors and healthcare for respiratory disease
Multi-morbidity
National Institute for Health and Care Excellence (2016) Multimorbidity: clinical assessment and management [NG56]
NHS England NHS RightCare Multi-morbidity
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