Conditions

Includes policy, guidance and intelligence on end of life care for different conditions.

Cancer

Cancer Research UK Cancer mortality statistics

Cancer Research UK Dying with cancer

Independent Cancer Taskforce (2015) Achieving world-class cancer outcomes. A strategy for England 2015-2020

National Cancer Registration and Analysis Service (2015) Older people and cancer report

National End of Life Care Intelligence Network & National End of Life Care Programme (2012) Deaths from urological cancers in England, 2001-10

National Institute for Health and Care Excellence (2004) Improving supportive and palliative care for adults with cancer [CSG4]

National LGBT Cancer Network LGBT Palliative care

NHS RightCare (2018) Long term condition scenarios: colorectal cancer

Public Health England, National End of Life Care Intelligence Network (2014) Head and neck cancers in England: who dies from them and where do they die?

Transforming cancer services team for London (TCST), NHS National Cancer Registration and Analysis Service (NCRAS) & Public Health England (PHE) Hospital use and cancer treatment in last 90 days of life, London

Cardiovascular disease

British Heart Foundation (2014) Difficult conversations - talking to people with heart failure about the end of life

British Heart Foundation Heart Matters Wellbeing – End of life care

British Heart Foundation and Marie Curie (2017) Caring for someone with heart failure at the end of life

British Society for Heart Failure (2017) National heart failure audit 2016/17 summary report

Department of Health (2013) Improving cardiovascular disease outcomes: strategy

Hospice UK Heart failure and hospice care resources

Hospice UK (2017) Heart failure and hospice care: how to make a difference

Marie Curie Caring for someone with heart failure towards the end of life

Public Health England Cardiovascular disease profiles

Public Health England, National Cardiovascular Intelligence Network Cardiovascular disease primary care intelligence packs

Public Health England, National Cardiovascular Intelligence Network Cardiovascular disease data and analysis: Guide for health professionals

Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2013) Deaths from cardiovascular diseases: Implications for end of life care in England

Royal College of Physicians Sentinel Stroke National Audit Programme (SSNAP)

Taskforce for Lung Health End of life – Right care in the last year of life

COVID-19

British Geriatrics Society COVID-19: End of life care in older people

GOV.UK Coronavirus (COVID-19) dashboard UK

Hospice UK Coronavirus Guidance (COVID-19)

Institute for Public Policy Research (2021) The state of end of life care: Building back better after Covid-19

Macmillan Cancer Support End of life care and coronavirus

Public Health England Excess mortality in England: Weekly reports

Public Health England Wider Impacts of COVID-19 on Health (WICH) monitoring tool

The Patients Association (2020) The Pandemic Patient Experience

UKHSA (2021) Guidance for care of the deceased with suspected or confirmed coronavirus (COVID-19)

Dementia

Alzheimer's Society, Alzheimer's Research UK and Marie Curie (2017) Caring for someone with dementia at the end of life

Department of Health and Social Care (2015) Prime Minister's challenge on dementia 2020

National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from Alzheimer’s disease, dementia and senility in England

National Institute for Health and Care Excellence (2018) Dementia: assessment, management and support for people living with dementia and carers [NG97]

National Institute for Health and Care Excellence (2019) Dementia [QS184]

NHS England (2018) My future wishes. Advance Care Planning (ACP) for people with dementia in all care settings

Public Health England, National Mental Health, Dementia and Neurology Intelligence Network (2016) Dementia data and analysis: a guide for health professionals

Public Health England, National Mental Health, Dementia and Neurology Intelligence Network Dementia profile

Public Health England, National Mental Health, Dementia and Neurology Intelligence Network and National End of Life Care Intelligence Network (2016) Dying with dementia. Data briefing

Social Care Institute for Excellence (SCIE) End-of-life care and dementia: An introduction

Diabetes

Marie Curie Caring for someone with diabetes towards the end of life

Diabetes UK (2021) End of life guidance for diabetes care

Frailty

British Geriatrics Society End of Life Care in Frailty

Hospice UK Frailty and end of life care - Questions creating conversations

NHS RightCare (2019) Frailty Toolkit

Kidney disease

Marie Curie Caring for someone with kidney failure towards the end of life

National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from renal diseases in England, 2001 to 2008

NHS England (2015) End of life care in advanced kidney disease: A framework for implementation

NHS RightCare (2018) Long term condition scenarios: Progressive chronic kidney disease

Liver disease

British Society of Gastroenterology (2014) BASL decompensated cirrhosis care bundle - first 24 Hours

National Confidential Enquiry into Patient Outcome and Death (2013) Alcohol related liver disease: Measuring the Units

National Confidential Enquiry into Patient Outcome and Death (2015) Gastrointestinal haemorrhage: time to get control?

Public Health England Liver disease profiles

Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2012) Deaths from liver disease: Implications for end of life care in England

Public Health England and NHS RightCare (2017) The 2nd Atlas of variation in risk factors and healthcare for liver disease in England

Neurological disease

Marie Curie Caring for someone with motor neurone disease towards the end of life

Marie Curie Caring for someone with multiple sclerosis towards the end of life

Marie Curie Caring for someone with Parkinson’s towards the end of life

Motor Neurone Disease Association Palliative and end of life care

NHS England NHS RightCare (2019) Progressive neurological conditions Toolkit

Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2010) Deaths from neurodegenerative diseases in England, 2002 to 2008

Public Health England, Neurology Intelligence Network and National End of Life Care Intelligence Network (2018) Deaths associated with neurological conditions

Respiratory disease

Marie Curie Caring for someone with a long-term lung condition

Public Health England Inhale - INteractive Health Atlas of Lung conditions in England

Public Health England (2019) The 2nd Atlas of variation in risk factors and healthcare for respiratory disease

Multi-morbidity

National Institute for Health and Care Excellence (2016) Multimorbidity: clinical assessment and management [NG56]

NHS England NHS RightCare Multi-morbidity

Contact us 

Send feedback and questions to neolcin@dhsc.gov.uk