People from certain groups sometimes experience poorer quality care at the end of their lives. This section signposts policy and guidance which addresses these inequalities.
Ethnicity
Age UK (2021) Breaking down the barriers of ethnic inequalities in health
BASW Palliative and end of life care for Black, Asian and Minority Ethnic groups in the UK
Care Quality Commission (CQC) (2016) People from black and ethnic minority communities. A different ending: addressing inequalities in end of life care
Public Health England, King’s College London, Marie Curie Cancer Care (2013) Palliative and end of life care for Black, Asian and Minority Ethnic groups in the UK Demographic profile and the current state of palliative and end of life care provision
Public Health England, National End of Life Care Intelligence Network (2017) Place of death by ethnic group for people who died from cancer, England 2008 to 2017
Race Equality Foundation (2018) Dementia and end of life care for black, asian and minority ethnic communities
Deprivation
All-Party Parliamentary Group for Terminal Illness (2021) No place like home
Marie Curie (2021) Inequalities in palliative care - Deprivation
Homelessness
Care Quality Commission (CQC) and Faculty for Homeless and Inclusion Health (2017) A second class ending. Exploring the barriers and championing outstanding end of life care for people who are homeless
Frontline Network St Mungo’s How to support individuals and end of life care needs
Government Statistical Service UK official statistics on homelessness: Comparisons, definitions, and processes
Hospice UK (2018) Care committed to me
Office for National Statistics (2020) Deaths of homeless people in England and Wales
St Ann’s Hospice Homelessness and palliative care – the film
St Ann’s Hospice Homelessness and palliative care: how can we improve equity of care?
St Mungos & Marie Curie Cancer Care (2017) Homelessness and end of life care. Practical information and tools to support the needs of homeless people who are approaching the end of life and those who are bereaved
The University of Sheffield and Crisis (2012) Homelessness kills: An Analysis of the mortality of people in early twenty-first century England
Prisoners
Ambitions for Palliative and End of Life Care Partnership (2018) Dying well in custody charter. A national framework for local action
Centre for Policy on Ageing (2016) Diversity in older age – Older offenders
Hospice UK (2021) Dying behind bars. How can we better support people in prison at the end of life?
Ministry of Justice Safety in Custody quarterly
Nuffield Trust (2021) Injustice? Towards a better understanding of health care access challenges for prisoners
Nuffield Trust (2023) Living (and dying) as an older person in prison
Prisons and Probation Ombudsman for England and Wales (2013) Learning from PPO Investigations: End of life care
Public Health England (2017) Health and social care needs assessments of the older prison population. A guidance document
Learning disabilities
NHS England & Palliative care for people with learning disabilities network (2017) Delivering high quality end of life care for people who have a learning disability
NHS England National end of life care programme: The route to success in end of life care - achieving quality for people with learning disabilities
PCPLD Network and NHS England (2017) Delivering high quality end of life care for people who have a learning disability. Resources and tips for commissioners, service providers and health and social care staff
PCPLD Network Resources
LGBTQ+
Hospice UK Providing palliative and end of life care to trans and gender diverse communities
LGBT Foundation End of life care
Marie Curie (2016) “Hiding who I am” The reality of end of life care for LGBT people
Marie Curie Palliative and end of life care for LGBTQ+ people
General
Care Quality Commission (2016) A different ending: end of life care review
Hospice UK Promoting equality in end of life care
Macmillan Cancer Support (2017) The final injustice: Variations in end of life care in England
Manchester Metropolitan University and Community Fund (2019) Good Practice Guidance. Supporting people with substance abuse problems at end of life
Manchester Metropolitan University (2019) Palliative end of life care for people with alcohol and drug problems
Marie Curie (2020) A place for everyone. What stops people from choosing where to die?
NHS England Addressing inequalities in end of life care
Office for National Statistics (ONS) (2023) Inequalities in mortality involving common physical health conditions, England: 21 March 2021 to 31 January 2023
UK Parliament POST Palliative and end of life care
Send feedback and questions to neolcin@dhsc.gov.uk
