Inequalities

People from certain groups sometimes experience poorer quality care at the end of their lives. This section signposts policy and guidance which addresses these inequalities.

Ethnicity

BASW Palliative and end of life care for Black, Asian and Minority Ethnic groups in the UK

Public Health England, King’s College London, Marie Curie Cancer Care (2013) Palliative and end of life care for Black, Asian and Minority Ethnic groups in the UK Demographic profile and the current state of palliative and end of life care provision

Public Health England, National End of Life Care Intelligence Network (2017) Place of death by ethnic group for people who died from cancer, England 2008 to 2017

Race Equality Foundation (2018) Dementia and end of life care for black, asian and minority ethnic communities

Deprivation

All-Party Parliamentary Group for Terminal Illness (2021) No place like home

Marie Curie (2021) Inequalities in palliative care - Deprivation

Homelessness

Care Quality Commission (CQC) and Faculty for Homeless and Inclusion Health (2017) A second class ending. Exploring the barriers and championing outstanding end of life care for people who are homeless

Frontline Network St Mungo’s How to support individuals and end of life care needs

Government Statistical Service UK official statistics on homelessness: Comparisons, definitions, and processes

Hospice UK (2018) Care committed to me

Office for National Statistics (2020) Deaths of homeless people in England and Wales

St Ann’s Hospice Homelessness and palliative care – the film

St Ann’s Hospice Homelessness and palliative care: how can we improve equity of care?

St Mungos & Marie Curie Cancer Care (2017) Homelessness and end of life care. Practical information and tools to support the needs of homeless people who are approaching the end of life and those who are bereaved

The University of Sheffield and Crisis (2012) Homelessness kills: An analysis of the mortality of homeless people in early twenty-first century England

Prisoners

Ambitions for Palliative and End of Life Care Partnership (2018) Dying well in custody charter. A national framework for local action

Centre for Policy on Ageing (2016) Rapid review of diversity in older age – Older offenders

Hospice UK (2021) Dying behind bars

Ministry of Justice Safety in Custody quarterly

Prisons and Probation Ombudsman for England and Wales (2013) Learning from PPO Investigations: End of life care

Public Health England (2017) Health and social care needs assessments of the older prison population

Learning disabilities

NHS England & Palliative care for people with learning disabilities network (2017) Delivering high quality end of life care for people who have a learning disability

NHS England National end of life care programme: The route to success in end of life care - achieving quality for people with learning disabilities

PCPLD Network and NHS England (2017) Delivering high quality end of life care for people who have a learning disability. Resources and tips for commissioners, service providers and health and social care staff

PCPLD Network Resources

LGBTQ+

Marie Curie (2016) “Hiding who I am” The reality of end of life care for LGBT people

Marie Curie Palliative and end of life care for LGBTQ+ people

LGBT Foundation End of life care

General

Care Quality Commission (2016) A different ending: end of life care review

Hospice UK (2021) Equality in hospice and end of life care: challenges and change

Macmillan (2017) The final injustice: Variations in end of life care in England

Manchester Metropolitan University and Community Fund (2019) Good Practice Guidance. Supporting people with substance abuse problems at end of life

Manchester Metropolitan University (2019) Palliative end of life care for people with alcohol and drug problems

 

NHS England Addressing inequalities in end of life care

Contact us 

Send feedback and questions to neolcin@dhsc.gov.uk