Data and intelligence

A list of other intelligence products such as reports, data sources and interactive tools which may be of interest to people working in palliative and end of life care.

Bereavement

COVID Bereavement Bereavement during COVID-19: A national study of bereaved people’s experiences and the impact on bereavement services

Department for Work and Pensions (2022) Bereavement Support Payment Statistics

Hampshire County Council Bereavement and end of life

Hospice UK Where to get bereavement support

Workforce

Hospice UK (2019) Results from an analysis of hospice community volunteering

NHS Digital General Practice workforce interactive dashboard

NHS Digital NHS workforce statistics

Skills for Care Data and publications

Carers / Unpaid carers

Age UK (2020) Parliamentary Briefing Social Care Reform

Age UK (2015) Briefing: the health and care of older people in England

Carers UK (2014) Caring and family finances Inquiry

Carers UK (2019) Facts about carers

Carers UK (2019) State of caring

Department for Work and Pensions (2022) The Family Resources Survey: financial year 2020-21

NHS Digital (2019) Personal Social Services Survey of Adult Carers in England 2021-22

Public Health England National GP Profiles (unpaid carers)

Office for National Statistics Population explorer: age, health and unpaid care

Office for National Statistics (2017) Unpaid carers provide social care worth £57 billion

Coroners

Ministry of Justice (2021) Coroners statistics 2020: England and Wales

Economic cost

Public Health England End of life care economic tool

Nuffield Trust (2014) Exploring the cost of care at the end of life

Funerals

Royal London (2020) The impact of Covid-19 on funerals. National Funeral Cost Index Report 2020

Sunlife (2022) Cost of Dying Report

General

Care Quality Commission Local authority area data profiles

Gold Standards Framework (2009) End of life care in primary care: 2009 national snapshot

Hospice UK Population Based Needs Assessment Tool (PopNAT)

Hospice UK Facts and figures

Institute for Public Policy Research (2018) End of life care in England, a briefing paper

Marie Curie (2021) The Better End of Life Report 2021

NHS Digital Social care collections 2021

NHS England Delayed transfers of care

NHS England (2019) NHS Continuing Healthcare and NHS-funded Nursing Care

NHS England NHS RightCare (2016) Long term condition packs

NHS England (2019) 'Where to look' packs

NHS RightCare Intelligence products

Office for National Statistics (2015) National Survey of Bereaved People (VOICES): England

Public Health England (2019) Classification of place of death

Public Health England (2017) Health profile for England

Public Health England, National End of Life Care Intelligence Network (2019) Death in people aged 75 years and older in England 2017

Public Health England, National End of Life Care Intelligence Network (2020) Emergency admissions in the 3 months before death

Public Health England, National End of Life Care Intelligence Network (2017) End of life care data to inform Sustainability and Transformation Partnerships (STPs): updated tool and metadata guide

Public Health England, National End of Life Care Intelligence Network & NHS England (2016) Evaluation of palliative care clinical data set

Public Health England, National End of Life Care Intelligence Network (2019) Older people who died in hospital: England 2017

Public Health England, national end of life care intelligence network (2019) Palliative and end of life care: hospital deaths 2006 to 2017

Public Health England, National End of Life Care Intelligence Network (2020) Older people’s hospital admissions in the last year of life

Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2011) External causes of death

Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2011) Predicting death: estimating the proportion of deaths that are 'unexpected'

Public Health England & NHS RightCare (2018) Atlas of variation for palliative and end of life care in England

 

The King’s Fund (2014) Making our health and care systems fit for an ageing population

Contact us 

Send feedback and questions to neolcin@dhsc.gov.uk