Data and intelligence

A list of other intelligence products such as reports, data sources and interactive tools which may be of interest to people working in palliative and end of life care.

Bereavement

COVID Bereavement Bereavement during COVID-19: A national study of bereaved people’s experiences and the impact on bereavement services

Department for Work and Pensions (2022) Bereavement Support Payment Statistics: background information and methodology

European Association for Palliative Care (EAPC) Bereavement care provision in palliative care – a European descriptive and consensus-building exercise

Workforce

Association for Palliative Medicine (APM) (2019) Report and overview of the palliative medicine workforce in the United Kingdom

Hospice UK (2019) Results from an analysis of hospice community volunteering

NHS Digital (2020) General Practice workforce interactive dashboard

NHS Digital NHS workforce statistics

Skills for Care Data and publications

Carers / Unpaid carers

Age UK (2020) Parliamentary Briefing Social Care Reform

Age UK (2015) Briefing: the health and care of older people in England

Carers UK Key facts and figures about caring

Carers UK Facts about carers

Carers UK (2019) State of caring: a snapshot of unpaid care in the UK

Department for Work and Pensions (2022) The Family Resources Survey: financial year 2020-21

Hospice UK Current state of caring for family carers in UK hospices

NHS Digital (2019) Personal Social Services Survey of Adult Carers in England 2021-22

Office for Health Improvement & Disparities (2022) National GP Profiles (unpaid carers)

Office for National Statistics (2022) Population explorer: age, health and unpaid care

Office for National Statistics (2017) Unpaid carers provide social care worth £57 billion

The Health Foundation (2023) Understanding carers and their access to support

Coroners

Ministry of Justice (2021) Coroners statistics 2020: England and Wales

Economic cost

Public Health England End of life care economic tool

Nuffield Trust (2014) Exploring the cost of care at the end of life

Sue Ryder (2021) Modelling demand and costs for palliative and end of life care services. A final report for Sue Ryder

Funerals

Royal London (2020) The impact of Covid-19 on funerals. National Funeral Cost Index Report 2020

Sunlife (2023) Cost of Dying Report

General

Care Quality Commission (2022) Local authority area data profiles

Gold Standards Framework (2009) End of life care in primary care: 2009 national snapshot

Hospice UK Population Based Needs Assessment Tool (PopNAT)

Hospice UK Innovation Hub

Institute for Public Policy Research (2018) End of life care in England, a briefing paper

National Institute for Health and Care Research (NIHR) (2022) Teamwork and proactive healthcare could help people with severe mental illness receive good end-of-life

NHS Digital Social care collections 2021

NHS England (2019) NHS continuing healthcare and NHS-funded nursing care

NHS England Resources for long term conditions

NHS RightCare RightCare resources

OECD (2023) Time for better care at the end of life

Office for Health Improvement & Disparities Musculoskeletal health: local profiles

Office for National Statistics (2015) National Survey of Bereaved People (VOICES): England

Public Health England (2019) Classification of place of death

Public Health England (2017) Health profile for England

Public Health England, National End of Life Care Intelligence Network (2019) Death in people aged 75 years and older in England 2017

Public Health England, National End of Life Care Intelligence Network (2020) Emergency admissions in the 3 months before death

Public Health England, National End of Life Care Intelligence Network (2017) End of life care data to inform Sustainability and Transformation Partnerships (STPs): updated tool and metadata guide

Public Health England, National End of Life Care Intelligence Network & NHS England (2016) Evaluation of palliative care clinical data set

Public Health England, National End of Life Care Intelligence Network (2019) Older people who died in hospital: England 2017

Public Health England, national end of life care intelligence network (2019) Palliative and end of life care: hospital deaths 2006 to 2017

Public Health England, National End of Life Care Intelligence Network (2020) Older people’s hospital admissions in the last year of life

Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2011) External causes of death

Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2011) Predicting death: estimating the proportion of deaths that are 'unexpected'

Public Health England & NHS RightCare (2018) Atlas of variation for palliative and end of life care in England

The King’s Fund (2014) Making our health and care systems fit for an ageing population

Versus Arthritis Data and Statistics

Contact us 

Send feedback and questions to neolcin@dhsc.gov.uk