A list of other intelligence products such as reports, data sources and interactive tools which may be of interest to people working in palliative and end of life care.
Bereavement
COVID Bereavement Bereavement during COVID-19: A national study of bereaved people’s experiences and the impact on bereavement services
Department for Work and Pensions (2022) Bereavement Support Payment Statistics: background information and methodology
European Association for Palliative Care (EAPC) Bereavement care provision in palliative care – a European descriptive and consensus-building exercise
Workforce
Association for Palliative Medicine (APM) (2019) Report and overview of the palliative medicine workforce in the United Kingdom
Hospice UK (2019) Results from an analysis of hospice community volunteering
NHS Digital (2020) General Practice workforce interactive dashboard
NHS Digital NHS workforce statistics
Skills for Care Data and publications
Carers / Unpaid carers
Age UK (2020) Parliamentary Briefing Social Care Reform
Age UK (2015) Briefing: the health and care of older people in England
Carers UK Key facts and figures about caring
Carers UK Facts about carers
Carers UK (2019) State of caring: a snapshot of unpaid care in the UK
Department for Work and Pensions (2022) The Family Resources Survey: financial year 2020-21
Hospice UK Current state of caring for family carers in UK hospices
NHS Digital (2019) Personal Social Services Survey of Adult Carers in England 2021-22
Office for Health Improvement & Disparities (2022) National GP Profiles (unpaid carers)
Office for National Statistics (2022) Population explorer: age, health and unpaid care
Office for National Statistics (2017) Unpaid carers provide social care worth £57 billion
The Health Foundation (2023) Understanding carers and their access to support
Coroners
Ministry of Justice (2021) Coroners statistics 2020: England and Wales
Economic cost
Public Health England End of life care economic tool
Nuffield Trust (2014) Exploring the cost of care at the end of life
Sue Ryder (2021) Modelling demand and costs for palliative and end of life care services. A final report for Sue Ryder
Funerals
Royal London (2020) The impact of Covid-19 on funerals. National Funeral Cost Index Report 2020
Sunlife (2023) Cost of Dying Report
General
Care Quality Commission (2022) Local authority area data profiles
Gold Standards Framework (2009) End of life care in primary care: 2009 national snapshot
Hospice UK Population Based Needs Assessment Tool (PopNAT)
Hospice UK Innovation Hub
Institute for Public Policy Research (2018) End of life care in England, a briefing paper
National Institute for Health and Care Research (NIHR) (2022) Teamwork and proactive healthcare could help people with severe mental illness receive good end-of-life
NHS Digital Social care collections 2021
NHS England (2019) NHS continuing healthcare and NHS-funded nursing care
NHS England Resources for long term conditions
NHS RightCare RightCare resources
OECD (2023) Time for better care at the end of life
Office for Health Improvement & Disparities Musculoskeletal health: local profiles
Office for National Statistics (2015) National Survey of Bereaved People (VOICES): England
Public Health England (2019) Classification of place of death
Public Health England (2017) Health profile for England
Public Health England, National End of Life Care Intelligence Network (2019) Death in people aged 75 years and older in England 2017
Public Health England, National End of Life Care Intelligence Network (2020) Emergency admissions in the 3 months before death
Public Health England, National End of Life Care Intelligence Network (2017) End of life care data to inform Sustainability and Transformation Partnerships (STPs): updated tool and metadata guide
Public Health England, National End of Life Care Intelligence Network & NHS England (2016) Evaluation of palliative care clinical data set
Public Health England, National End of Life Care Intelligence Network (2019) Older people who died in hospital: England 2017
Public Health England, national end of life care intelligence network (2019) Palliative and end of life care: hospital deaths 2006 to 2017
Public Health England, National End of Life Care Intelligence Network (2020) Older people’s hospital admissions in the last year of life
Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2011) External causes of death
Public Health England, National End of Life Care Intelligence Network & National End of Life Care Programme (2011) Predicting death: estimating the proportion of deaths that are 'unexpected'
Public Health England & NHS RightCare (2018) Atlas of variation for palliative and end of life care in England
The King’s Fund (2014) Making our health and care systems fit for an ageing population
Versus Arthritis Data and Statistics
Send feedback and questions to neolcin@dhsc.gov.uk
